The title of this article is a “gallows-humor” type of joke that most Americans “get” instantly. For our non-American members, it may help to point out that Abraham Lincoln, one of our most respected Presidents, was assassinated while attending a play with his wife.
The homeless Klingon I chose as a poster child for this article has got the idea of gallows humor just right, in these days of financial turmoil. Not a Star Trek fan? Forgedaboudit, you won’t get the joke.
I came across a thoughtful article on the subject of humor in oncology on the cancernetwork.com. A small excerpt from it is below. You can read the full article by clicking on the link. Well worth the read, in my opinion.
Cancernetwork.com
By L. Michael Glodé, MD. August 11, 2011
Another vignette I can share is the patient whom you know well comes in after his or her scans demonstrate progression of disease after second- or third-line chemotherapy. You gently go over the options, focusing on palliative care as being your preference, and point out that additional therapy carries as much probability of doing harm as it does of doing good. The patient responds with words to the effect that “this is it, huh? There’s really nothing else you have to offer?” You go over phase I clinical trials, etc., but the telltale signs of cachexia, inanition, and so forth tell you that the patient really is within 3 to 6 months of dying. The pregnant question comes up: “So I’m really that close to the end?” To break the tension, I often introduce an image that has stayed with me since my teenage years. It comes from an old TV ad for life insurance.
A group of four guys are at a bowling alley, laughing, having a good time. From the left of the screen, two partially transparent gentlemen with wings emerging from the back of their business suits appear and walk up to one of the guys. They take him by each arm and lead him to a partially transparent escalator that has appeared on the far side of the lanes. As he is going up the escalator with the angels, he is heard to remark, “But wait, I was working on a spare!” I think this illustrates both the irony of being alive, our commonality in living as though we will never die, and an example of how humor can defuse one of the most challenging of situations we face.
Life sucks, most of the time. For some, it sucks more than usual. Then we die. How is that for a depressing view of life? If that is all there is to it, why bother? It makes what little life we do have not worth living.
I refuse to hold pity parties. I will not be a Polyanna either. I fought this cancer tooth and nail for as long as I could, while my husband was alive. Now that he is dead, I continue to fight it, with everything I got. So, other than that your husband died, Mrs. Venkat, how are you enjoying the CLL scene?
CLL scene is just fine, cooking with gas, new drugs and new research improving chances for our patients. If we keep our wits about us, if we actually get off of our well padded backsides and get personally involved in helping the patient community, some of these gleams of hope may even become reality. Too late to be of help for my husband – but not too late for you and yours, and definitely not too late for your kids and grand-kids who may inherit this nasty disease. I do not know of anything that helps me regain my sanity after a bout of depression as much as my sense of humor.
A small minority (fortunately for my ego, a very small minority) of my readers find my sense of humor disrespectful. I get a few emails asking me how I can possibly be so insensitive as to be snarky about this subject when people are dying, people are hurting, people are scared out of their wits. Simple. No one elected me god, and I cannot change life. Which sucks, as we all know. All I can do is teach you to better understand this disease. I can think of no other way of making the medicine of patient education go down more smoothly than make it a bit funny. You think you will understand T-cell function better if I made it all serious science, in the last article I wrote on the subject of T-cell therapy? Or is it easier to get the details if I tell the story in terms of clever criminals learning to avoid police officers struggling with paperwork or sleeping on the job? By the way, I strongly urge you to read the T-cell therapy article. The more I think about it, the more I like it. Really cool stuff.
The following quote is from an anonymous cancer patient. I think he hit the nail right on its head.
“The other reactions—anger, depression, suppression, denial—took a little piece of me with them. Each made me feel just a little less human. Laughter made me more open to ideas, more inviting to others, and even a little stronger inside. It proved to me that, even as my body was devastated and my spirit challenged, I was still a vital human.“
Believe me, I know all too well how hard it is to keep the old sense of humor alive and kicking. The previous couple of weeks of silence and my reason for canceling the Fall workshop is mostly because I ran out of emotional steam. And my sense of humor drowned in a flood of tears. Examining my own navel for too long has that unpleasant effect. No more of that. I will keep going for as long as I can, poking fun at cancer every chance I get. And when I die, I hope I am able to flip the bird at cancer in general and CLL in particular, as the very last thing I do in this world. It is my personal goal, and I hope it is yours too.
So, do us all a favor, tell us your best CLL joke. We promise to laugh uproariously.
78 comments on "Other Than That, Mrs. Lincoln, How Was the Play?"
Chaya,
Your sense of humor is to die for! (ha!)
Your last paragraph, beautifully said…I’m with you all the way!
June
Chaya, you are right on about humor. I learned many years ago when I was a kid in nursing school, the only way to survive was to use “gallows humor.” Anyone in medicine knows that.
My extended family was large and I grew up in a home with my father and 5 aunts and uncles and a grandmother the first 8 years. There was so much laughter in that home. And I noticed through the years as everyone got older, and my relatives died one by one, the laughter diminished. Once in a while when I see the twinkle in my 88 year old uncle’s eye I am reminded of that laughter. (This is my uncle that probably has cll that will not really affect him in his lifetime.)
This is exactly WHY I love to be with my thirty some children’s friends. They are still laughing. Norman Cousins certainly influenced his disease process with laughter. It can’t hurt. Maybe this is why I love those belly laugh movie comedies that appeal to the young people. Nothing is more healing than a deep down belly laugh. Marilyn
Without humor we may just as well shoot ourself.
I love your articles.
Thanks for keeping us informed
My kinda attitude, Chaya! My doctor and her nurses have all said that they remember me more than most patients BECAUSE of my sense of humor about this entire disease and process! They wish that more patients could see it that way. I believe that it would probably not only help them handle their disease, but might even help them to live longer, happier, more functional lives with what they have left.
I also believe that keeping a sense of humor about it helps those around me deal better with it…as well as myself. At least my family and friends agree.
So, keep it up…don’t stop your humorous anecdotes and using humorous comparisons to make it easier for those of us who are not medically trained to understand this complex biological machine we call our bodies.
At least for me, your sense of humor is the major reason I have continued to stay interested in your (our!) group here.
Thanks loads…and don’t give it up..
Harley
Chaya, this CLL patient appreciates your sense of humor. For goodness sakes, the fight for our life is pretty heavy stuff, so when we can take the lighter side of it – so be it. You of all people understand the seriousness of the disease as you have made the ultimate sacrifice by losing your husband.
What I have learned in life (as well as politics and religion :-)) you are NEVER going to please all the people ANY of the time.
We have free choice – if you don’t like it don’t play – in this case don’t log in.
As many as your other members, I am a fan and love your sense of humor and TOTALLY appreciate your altruism in supporting this cause. Because of you and this website, I truly believe my life has been extended.
So, saying all that… everyone who agrees, it is now time to show our appreciation by donating. My contribution is on its way.
Thanks Chaya!
Given your struggle to regain equilibrium and Dr.Hamblin’s daily battle against his cancer, it is imperative to say plainly how much you both are valued and appreciated.
I am sure I am not the only one who immediately checked to see your explanation of this latest research milestone, knowing you would be clear and honest in your evaluation. While this acknowledgement is meant to be a personal validation, it is also very clear that your dedication may be a heavy burden that we cannot judge.
With all that, to produce such a teaching tool in an almost whimsical manner is a testament to the qualities of both your mind and heart.
“Live long and prosper”.
Rather than repeat all the comments I just read, let me say “ditto.” We all appreciate everything you do for the CLL community. It’s the humor that helps us get through the technical stuff.
Thanks for leading us on this fight for our collective lives!
Jim
Not to mention that much of your humor comes from the way you make CLL facts readily understandable eg the policemen and criminals. For me this makes the disease less scary, even though of course it doesn’t change the progression. Thanks for all your hard work. And above all for your courage, which is “encouraging” for the whole community.
Mike P.
People need to lighten up. They will live longer. Keep up the humor and for those who don’t appreciate yours, go elsewhere.
I have a choice, delve in to the depths of despair, or keep my sense of humor and laugh. I may not be able to choose the trip, but I can choose how I take it. I’ve never found fault or offense with any of your writings and appreciate more than you know all your efforts. Mike
Your attitude and how you deal with life’s everyday challenges, not to mention mu CLL with an 11q deletion, is the ONE thing you can control. Try to make everyday a good day.
I can’t believe anyone would email you to criticize you “sensitivity” to the suffering CLL can cause, after what you have been through. They should be ignored, beat up, removed from list….okay maybe not, but tempting.
Also, of all the material coming out of this week’s news; from the full version texts to the soundbites and everything in between, it was your article I forwarded to friends, in and out of the CLL world, because it DID make it understandable, and even fun and interesting.. My husband who has CLL and is perfectly capable of reading the scientific versions – I chose to send him yours – as he could read the news and enjoy the analogy.
There will sure be times for every single person reading (and writing) CLL topics when nothing in life seems funny or joyful. But to tell that to someone who has already lost a husband, and probably friends, is in very poor taste and insensitive. Thank goodness you can express things as you do, for all of us.
Heléne
It’s so good to see you back.
Humor has kept me going through so much — I can’t imagine getting through those times without it. It helps me realize that I can’t always change what is but I can change how I think about it.
Cancer does suck. It’s taken too much from many of us for far too long. It deserves all the snarkiness we can muster.
So, on my way out I’ll be joining you in flipping the bird — mine will be to CLL and gastric cancer.
I echo all that has been said above. I can’t thank you enough. Please take care of yourself.
Jayne
(almost 8 mths post SCT and still so far so good!)
I remember in the first few weeks after my husband’s diagnosis, I was feverishly reading everything I could find about CLL. There was panic, fear, and total loss of rational thinking on my part.
After a particularly tough day when I would not pay attention to anything other than the CLL, PC came up to me – a frown on his serious face, and said somberly that he thought his stomach bulged out quite a bit on the upper left corner – the location of the spleen.
I was stunned, devastated that his disease was progressing so very rapidly. It took a couple of minutes to realize he had sneaked in a soft kitchen towel under his shirt to make the bulge. I spent the next half hour much more pleasantly, chasing him around the house trying to swat him, but hard, with the kitchen towel and our dog Jasper ran around joyfully barking her head off at all the excitement.
Thanks again Chaya for a wonderful and timely article. As a nurse and a wife of a client with fairly aggressive CLL, I see personally the stress of illness, quality of life and effect of chronic illness on families. I often use humor with my patients. I try to stress QUALITY of life vs. QUANTITY of life. Without quality there is no life…
My husband has a great sense of humor and it has made such a difference in how we both cope with his diagnosis, chemotherapy and daily living. I know we don’t put off till tomorrow what we can do today and we are traveling more, and embracing each day we have.
Keep bringing us the news – good and bad AND your wonderful sense of humor!
Oh, and for CLL humor:
When shopping for new cars and you notice that the vehicle has a 10-yr warranty, is it inappropriate to exclaim, “Oh look, a lifetime guarantee!” ?
(Okay, nobody said I had to have a good sense of humor. Sick humor counts, too.)
The next time you go to see your GP and he says you need to shed a few pounds, rather than excusing yourself by saying you have “heavy bones”, tell him it is all these heavy lymph nodes. I promise the guilt trip will shut him up right away.
CLL humor…
Sitting in the living room after the diagnosis my husband looking quite shocked and devastated…I don’t know what came over me but…I looked at him and said, “Well, at least you know what you get to die of!” He looked at me and we both couldn’t stop laughing!
Dear Chaya,
That sense of humour is essential, as well as a healthy disrespect for some of the utterly depressing “advice” dished out by some do-gooders and some who supposedly know what “cancer-sufferers” need; not necessarily what they have asked for.
My feeling is that you do more good by being humourous, giving clear “translations” of science and talking to and with people with humanity and humility.
It is important to dare to live and still love life; not just dread what may and often will, come.
Thanks from the bottom of my heart, I think of you, what you have endured and how you still laugh, and it helps me “stommach” some of the stupidity I have encountered after having been “helped” to become a “cancer-sufferer”; something which impacts in oh so many ways outside the illness. I am “lucky”; the stuff is indolent and no treatment is envisaged in the forseeable future, but….as you said, peace of mind has gone forever.
Keep at it, keep translating and keep the smile and your firm anchor in reality.
Thanks again.
Mette
Hey Chaya
Laughter is the best medicine but a close second is music. If you could see the smile on my face when I get up to play it just warms the heart. The next CD of Little Derek and the Haemo Blues Band will be recorded live on Oct 28 and the key song will be “You Don’t Understand” for which I will have a choir of cancer survivors join me to sing the chorus. The song is a hit back at all those inane comments we get from the well intentioned who really don’t understand and who at times I want to tell them how insensitive and stupid their remarks are. The last line of the song says it all And I’m so glad you don’t.
I’m on the board of the CLLPAG the patient advocacy group in Canada. We have just changed our name to
CLL LIVE CANADA cos that’s what it’s all about.
Keep laughing, keep smiling and keep loving…nothing else really matters!
11Q Derek
I love, and so appreciate your sense of humor, Chaya! I think I read your articles as much for the humor as the important information you provide us CLL’ers. It keeps me from taking myself too seriously and really diving into a well of depression. Don’t change a thing!
i love humor.i look for it everywhere,in television,in newspapers,other people and myself.i will look for ways to laugh everyday for the rest of my life.cll does not need to be a deal breaker when it comes to humor.regardless of how badly you feel,laughter will make you feel better and give you hope.
as CLL patient I find humour to be my lifeline in my times of difficulty.
One example:
When on holiday in the med with my husband we discussed the cheap cigarettes available, we live in the UK and cigarettes are very expensive here.
We are both ex smokers for over 30 years, who occasionally hanker after a smoke- although we never have given in. Well my hubby suggested we buy 1 packet and smoke them on holiday.
My response was an emphatic no- I told him ” I don’t want to die before my time!” We had such a giggle about it and never thought about the smoking again.
Chaya you are always so upbeat, that is a great asset, humour puts us in touch with the life that courses through our bodies.
Chaya
I have been following your words of wisdom and new CLL develpments for
four years now. Your information helps almost as much as a good Belly Laugh.
Quite simply captain, I examined the problem from all angles, and it was plainly hopeless. Logic informed me that under the circumstances, the only logical action would have to be one of desperation. Logical decision, logically arrived — Spock
Chaya, our CLL Captain— thanks for the updates—I was starting to exhibit seperation anxiety—
Sometimes I will ask my wife to feel my spleen secretly hoping her hand will stray. Sometimes it works!
Be yourself, don’t change a damn thing Chaya, love you, Abe
So my last trip to my doc involved me revealing a rather swollen and distended abdomen. Of course, I hopped up on the table and the doc pulled up my shirt. He exclaims “Oh! You’re pregnant!” (I’m assuredly male.). I laugh, my wife laughs and the PA sort of laughs (I’m guessing it was not the first time that doc had used the line). He orders up a barium buffet and CT scan of my lower GI. I was lucky to be able to get it done that day, but it still involved spending way more time there than I wanted to.
Finally got to the intake person in CT Imaging who asked the usual questions, along with “do you know why you are here?”
“Of course. My doctor says that I am pregnant, so I am here to get pictures of my baby!”… all said as i gently stroked my swollen gut. The reaction was pretty much as if I had just blasphemed all that was holy to everyone. Silence. All I could say was “Really? Nobody here has a sense of humor?” Turns out that one of the techs had overheard and told me in a guarded moment that he thought it was hilarious.
Chaya, if you’ve been struggling, you are among friends. But yesterday you were indeed vintage Chaya. You again took the complex, heavy stuff, simplified it and lightened it up to where I could understand it. So again it wasn’t a drudgery. For this right-brain, that is miraculous (ask my scientist husband). Furthermore, my oncologist refers to me as a well-informed patient. I have you to thank!
When I found myself in “ugly bucket C” several years ago I needed comic relief. I found some of that in writing a spoof on CLL which I sent you some years ago. I remember you enjoyed it, and so did my oncologist.
Personally, I would favor a humor feature in any day-long cancer event.
Chaya: Thanks once again for understading us so well . I must admit that before I finished the article I cried .The thought of loosing you or anyone is naturally painful,strangly not so of my own demise.I think anyone with CLL has to make peace with that sooner or later .In the end I roared with laughter thinking of you flipping off death . I hope I can remember to do that .Life takes work ,death is automatic, I choose to live for the sake of living and not for the sake of death.I was always taught that we have guardian angels ,it was just ths sari that threw me …
I recommend a laughing babies you tube shot per day. Here’s a good one:
http://www.youtube.com/watch?v=cXXm696UbKY
My father, who had CLL back in the 1940’s, put the names of the experimental drugs he was on to the slow movement of Tchaikovsky’s 5th Symphony, where they fit perfectly! In that tradition, when I was dx’d I made a list of pros & cons and later wrote some poems. Among the pros was not having to worry about running out of conversation at a party. The poem’s title is “Four Aspects of My Smaller Neck Following the First Round of Chemotherapy.” Here’s are two of them:
This is how I look.
This is not how I looked yesterday.
This may not be how I’ll look tomorrow.
As a matter of truth
can this be said to be how I look
or merely how I’m looking?
Asked by
the cute male nurse on the last day
of the first round of chemo
how I was feeling,
I answered I was feeling pretty
but spared him the song.
Chaya,
You have unknowingly been my guiding light in my brief foray into the world of CLL. You have been at this a long time and I know you must be weary.
Let’s all pray that the recent news is the beginning of the end of CLL and that Chaya can be relieved of her burden to educate us, so she can walk off into the sunset flipping the bird along the way!
Love all your updates. Thank you,
Be well,
Monique
Dearest Chaya,
I love what Marcy said .. you are among friends. It’s our turn to hold you up, give you a warm hug .. maybe feed you some chamomile tea like Peter Rabbit’s mom used to do after he had a traumatic day in Mr McGreggor’s cabbage patch. You are always digging in that patch, turning over the dirt and finding nuggets of information for us, then refining that into models we can understand.
I am so grateful to have your prodigious brain on our side, but equally honored to have your wonderful fiery spirit. Please take good care of yourself and find ways of giving yourself treats, laughs and moments of calm. And if there is anything we can do for YOU .. let us know. It would be such a gift to have a way of giving back to you. (I will hit the donate button, but I also want to support you emotionally.)
Love
Lynn
Ellen .. two more aspects, please. Love your poem !!
I truly love the humor you use. It indeed makes this tremendously difficult journey easier to manage. I’m so glad you took time out for yourself and gave yourself permission to cry. But, I’m equally very thankful that you have returned to all of us who need your expertise and humor. Thank you for all you do!
Debbie
Old chap with CLL sitting on the patio having a drink with his wife at sundown. She says, “You know I love you so much I don’t think I could live without you.” He says, “Is that you or the wine talking?” She says, “It’s me – talking to the wine.”
Last time I was at the NIH, when the doctors were letting me know that my abdominal nodes were normal, I said….”darn, I thought I could blame my weight gain on enlarged nodes”. At least I made them smile.
My sister & I appreciate all you do for us Chaya.
Louise (Goetz) Kollmann
Chaya,
I read all of your articles, and very seldom reply. A couple of weeks ago I was in the process of replacing my furnace. The contractor told me I had 2 options, one furnace was warrantied for life, the other (much cheaper)had a 20 year warranty on it. It was the first time my CLL saved me money! Thanks and keep up the good work.
Gil
Chaya, in my honest and humble opinion I believe that whoever would say such a nasty thing to you either does not have CLL (possibly a caregiver?) or they are wallowing in self-pity. Personally, I do not have time…literally… for people like that. Count me as one of your true fans and ardent admirers!
While not “CLL humor” I do have a “funny” to relate. Several years ago before my discharge from active duty Naval service, I was assigned to the “Funeral Detail.” We were the ones assigned to a veteran’s funeral to carry the coffin, present the flag to the surviving family member, and to fire rifles in salute to the departed. It was not unusual for the detail to attend as many as four or five funerals in one day. Talk about the need for gallows humor! Of course with a funeral being a very solemn event, we could never crack a smile. Imagine our difficulty trying to keep a straight face one day at this particular funeral. The funeral was taking place in the country on a very high hill. Because we had a small rifle team we would fire two rounds in salute. This particular day I gave the commands to fire and as my team did so we all suddenly heard hundreds of turkeys gobbling! There was a turkey farm at the bottom of the hill! How my team maintained their decorum and how we were able to fire that second round, I will never know! However,the bus ride back to base was filled with laughter!
I had RCHOP starting in October 2008, and that didn’t work very well.
So then I had FCR starting in October 2009.
I had treatments 2 years in a row over the holidays.
I didn’t have any treatment in 2010, and when the holidays rolled around last year, I said to my wife “It just doesn’t feel like Christmas without going through chemo.”
She didn’t think I was as amusing as I did….lol.
Yes….keeping your sense of humor is important.
Chaya,
You have a superb set of skills – your ability to digest difficult scientific material, then translate it into readable, easy to understand concepts and images is outstanding, and your personal experience has given you a deep understanding and empathy for the rest of us in the CLL community.
I must admit however, that for me, your feisty spirit and ‘wicked’ sense of humour is the spark that leaps across the miles, gives my heart a lift, and makes me smile every time.
No need to ever doubt your style!
Chris
When I was first diagnosed in 2004, I immediately went into pity party mode. (I know, I’m not proud of it either.) Finally, having had enough, I stirred around and decided to buy up all the CALVIN & HOBBES books. I read them straight through, and I had laughs galore, sometimes on nights I could not sleep.
Laughter is definitely HEALING, you can feel it immediately. Ever wonder how those comedians from days of yore (Bob Hope, Berle, Red Skelton, et al) lived to be so OLD? Laughter.
We love you just the way you are, Chaya. So let’s continue to laugh while we can.
There’s really no way to thank you properly for all you do. But, thank you….
I went up to an American Cancer Society booth at a public event and the guy asked me if anyone I knew had dealt with cancer. I told him about a couple of relatives and that I had lymphoma and was currently in remission. He said “So you’re a survivor!” I replied “So far.”
Laughing at my own situation helps me be more positive and that’s a very good thing.
Thank you , Chaya, for all you do!
Hi Chaya and all
My husband and I have a daughter (now 35) who had ALL when she was 3. There was a book we got from Children’s Memorial about talking to your child about cancer. I vividly remember the cartoon of the superhero “Methotrexate” speeding through the lumbar puncture needle to kill all those scared blasts. Methotrexate had a cape and big muscles, kind of like Superman, only bald. The blasts were these wiggly amoeba-looking things that were afraid of Methotrexate!!!
Fast forward to my Tom’s first round of Rituxan/Fludarabine. As we watched the drip of Rituxan going slowly into Tom, I recalled that cartoon from our daughter’s leukemia book. So I said to Tom: “You should imagine Rituxan chasing after those bad CLL cells! What do you think Rituxan would look like?” He said: “Maybe like Superman, but with whiskers and a long tail.”
Last Christmas, my brother Jerry gave me a “headie”, an egg-shaped, head-size pillow imprinted with Jerry’s grinning face on it. It was hilarious! I soon began to think of ways I could use Jerry’s headie to lighten up my situation a little for myself and for my family. I started a six month course of FCR in January and by my third treatment, an idea came to me for a “Jerry Headie” gag. I took the headie to my chemo appointment, and set it up on the chemo tray next to me, coiling the chemo tubing over the top of its bald head in such a way that it looked like we were both receiving the infusion. My daughter snapped a picture which I later emailed to the family. I explained that Jerry was so concerned about his sister having to go through chemo, that he not only accompanied me to the cancer clinic, he insisted on getting chemo too!
Humor not only makes me feel better, it seems to help my loved ones lighten up and treat me like a normal person and not as a “cancer patient.”
A widow of almost four years, I know firsthand how depression and loneliness can creep in. Thank you for keeping on, Chaya. You are doing important work.
Kathy
Chaya:
Mega ditto’s to everyone’s comments – you are a large part of the reason I don’t even think about having CLL most of the time – knowing when the time comes I’ve got a source for great info.
2 medical humor stories:
One of my fond memories of my grandmother was while on her death bed the doctor asked if she knew what was happening? to which she replied, “Yes, I’m kicking the bucket!” as she kicked out her foot.
Prior to being examined for testicle pain (not related to CLL) I told the doctor I was very concerned about him handling my boy’s and that I wanted to hold his during the exam and that “I won’t hurt him if he didn’t hurt me!” He had no sense of humor at all! :-((
Ken Miller
As I felt and saw the chemo taking effect, I wrote (on Facebook) :
“I’m melting, I’m melting!” cried the wicked cancer tumor of the West Lymph.
At least 13 people Liked it.
-Julie
I came to terms with my own mortality in 1975. It wasn’t until I realized that I was going to die that I could offer anything meaningful to my own patients. Yesterday, I had an attack of subacute intestinal obstruction and had to fast for a day and increase my steroids. Palliative measures are very important with cancer and have to be weighed against the value of active intervention. For me, the future is better than the past and I urge people to read my blog to find out why.
Humor is part of palliation, so Chaya keep it up. Your sideways take on some of these technical matters is eye-opening and illuminating. Keep it up!
My favorite story is one I told about Kanti Rai. He was approached by a frog who told him, “If you kiss me I will turn into a beautiful princess.”
Kanti ignored the frog.
Again the frog said, “If you kiss me I will turn into a beautiful princess and I’m all yours.”
Still Kanti ignored it.
The frog, “If you kiss me I will turn into a beautiful princess and I’m all yours to do what you like with.”
At this Kanti picked up the frog and put it into his pocket.
From his pocket came a muffled cry, “You have to kiss me.”
Kanti removed the frog and said, “Listen. At my age, a talking frog is worth more!”
Chaya,
One of my patients came to see me with multiple complex medical complaints. When I examined him I found he had a carrot sticking out of his left ear, there was obvious asparagus stuck in his right nostril, ketchup on his eyebrows, and his forehead was smeared with what appeared to be chicken curry.
My diagnosis was obvious and immediate. I told him that he was not eating right.
As the oldest living confederate widow said so many years ago-he who laughs, lasts
Brian Koffman family doctor, CLL patient, and very occasional standup comic; see bkoffman.blogspot.com
Chaya,
You use the Internet to help all of us, and today we use it to offer words of love and support to you.
Bless you for being honest about your own need for rest. You are human.
You are also superhuman to those of us who rely on your insight and who love your sense of humor.
I would be honored to pour that cup of chamomile tea that Lynn prescribed for you. Instead I will reach out to you when I’m at the NIH next spring and will buy you lunch at a wonderful Indian restaurant I found in Bethesda. It’s because of you that I enrolled in the NIH natural history study … and when the NIH people asked how I learned of it, I said, “Chaya,” and they all smiled knowingly.
We are blessed by your work and your spirit. Thank you.
Judy
I love this format of being able to comment. I have gotten used to Facebook and keep looking for a “like” button. Through the comments I am further educated, supported, encouraged, and accompanied. Thank you all!
Hi Chaya,
I was only recently diagnosed just after celebrating my 50th B-day and of course the first thing you do is try to research what this is and everyone I spoke with all said check out CLLtopics it is really the most accurate information out there. Well I have to agree and although I am sorry for your loss. I thank you for your courage to continue so someone like me gets the most accurate and current information available. It’s an extra bonus that we can get this information and still be able to laugh. So please keep the humor going.
Sue
We have to give our birthdate before treatment infusions. Once I said my year of birth was 1848 instead of 1948. When the nurse looked funny at me, I just told her the drugs were making me feel ancient. :)
Another time I put a sign on my “infusion chair space” that said “This is a needle free zone – pills only please” and that made the nurses laugh. Also, in the cancer support group I attend we do plenty of joking and laughing. It all makes living with cancer or caretaking easier, yes?
Thanks for all you do, Chaya.
Thanks to all those who included some humor in their remarks. I had several rounds of tearful laughter!
Bob, a CLL saurvivor so far.
Chaya,
As you know, I always enjoy your articles and your humor. You have a gift. Please continue to use it. I sometimes get down as we all do.
Remembering my last series of chemo, I was telling a friend I have so much going on right now with chemo, steroids and all I can worry about is constipation.
Well, she laughed and laughed. We all have to remember the humor aspect and of course, music. Makes life a bit easier.
Do take care, Chaya and Many Blessings.
Rita
Chaya-
“You give much and know not that you give at all”-Kahlil Gibran
I don’t think you realize how much we all rely on your brillance, humor and expertise. You have guided me through 7 years of cll-watch and wait, treatment and post treatment. You have helped me in making a decision for participating in a clinical trial-one of the biggest decisions I have ever had to make.
I feel very blessed to have you in my life-humor and all. I hope your spirits feel better soon.
I am with you and your humor all the way……When I was having my infusions of Rutuxen at Harbor Hospital in Baltiomore, I would post on my facebook page that I was at the ‘Harbor’ relaxing and meeting new people – had a great lunch etc etc……Well people who know I have CLL knew what I meant and where I was…..others who didn’t know thought I went to the Inner Harbor in Baltimore a LOT since I was there twice a week LOL…When I left to go to San Diego, one of the people who was out of the loop said ‘I bet San Diego has a beautiful Harbor too.’ I replyed that yes indeed it does.
Darlene
I have never posted before but I read something from your two sites every day in an attempt to better understand CLL – to be better informed. Your humor, clarity and caring keep me coming back for more. I thirst constantly for knowledge because I believe knowledge is power. Your site has become a “Holy Book” in my quest. I thank you with all my heart, mind and soul.
I remember four years ago getting a full write up after being diagnosed and finding out that I was definitely in bucket C and that other than my blood, most of my body was “unremarkable”! I thought “How could anything in my body be unremarkable”? I was confused and scared. A few weeks later my sister, who is a nurse, explained to me that unremarkable was a medical term for a good thing. I laughed and laughed at my own ignorance and fear. I decided at that time never to get depressed or be afraid of this cancer again but to look at every aspect of this trial in a positive light. I now tell everyone who will listen that my entire body is “unremarkable” and watch to see their reactions :-) Paul
“HAPPINESS CAN BE FOUND,
EVEN IN THE DARKEST OF TIMES,
IF ONE ONLY REMEMBERS
TO TURN ON THE LIGHT”
DUMBLEDORE
HARRY POTTER AND THE PRISONER OF AZKABAN
Thank you again, Chaya, for another excellent article. And thanks to all the folks commenting about it.
When I was newly diagnosed with CLL, I experienced the same dismay and anxiety as everyone else usually does. Then I came across a couple of cartoons in the New Yorker that made me laugh. Each shows a white-coated doctor talking to a rather gloomy looking patient:
“There’s no cure. There’s not even a race for the cure.”
“Well, let’s reverse the question. Why not you?”
These may sound cold, but they helped me take a new view of my condition. You just have to laugh in its face on occasion.
Chaya,
While I have visited this website countless times over the five years (since I was diagnosed with indolent Small Cell Lymphoma), this is my first post to comments.
This website is one of the best available to those of us who are trying to make good choices about how to live (and fight) our disease(s). Your continuation of the website after the loss of your husband is, in itself, a most admirable effort. That you now provide one (if not THE) best resources for CLL/Lymphoma patients, family, and friends is a worthy tribute to PC and a testament to your countless hours of dedicated hard work.
Please rest assured that your efforts are greatly appreciated by people like me, and that I(we) are forever indebted to you for the information and support you provide to us.
May you live long and never lose your wonderful sense of humor.
Ciao,
Boatlessjoe
Did you hear about the schizophrenic who had multiple myelemia?
chaya thank you for your dedication, hard work, your strong voice, advocacy, information. life is grand! a.w.h (always with humor). stephen
As my wife, who has advanced MS, is paralyzed on one side and can barely walk, puts it, “If you’re upright and breathing, you’re ahead of the game.” And as I tell my oncologist, “I plan to live forever — so far, so good.”
Keep it up, Chaya. We’re in your corner, as you are in ours.
Chaya, thank you so much for being you. I don’t think I could have made it so far without you, your dedication, your knowledge, which you share so generously with others. Life without humor is no life at all….why bother?! Unfortunately, we all suffer down-times. Thank you from the bottom of heart for helping lift me up by creating giggles.
Betty
My wife and I refer to anything that might kill me sooner than CLL (plane crash, heart attack, etc.) as a real cancer beater! I’ll have a huge smile on my face as the plane goes down knowing that I’m about to successfully run out the clock on my CLL!
Thanks for everything you do Chaya. I was also in a panic early on (4 yrs ago) and reading your articles is a major part of how I got back to my old self where I can joke about it. I don’t know you but you’ve had such a huge impact on my life and therefore the people around me. Thank you, thank you, thank you!
One piece of advice given to me by my oncologist, Dr. Byrd, is to maintain normal activity to the extent possible (humor, as a part of this, is a given for me). Of course he advised to take reasonable procautions against contracting colds, flu, etc. I feel this has worked well.
I have now been in the PCI-32765 trial for a year and feel great.
When medical personnel ask for my date of birth, I sometimes say “August 1, 1940 A.D.”
Chaya
keep your sense of humor. A person with sense of humor are a more complete person.
The humor is the salt of the life.
We feel strongest and more comfortable seeing that you does not give up in this fight against CLL.
With you at our side the battle becomes more easy and clarified.
When you talk about P.C. Venkat we can imagine how much he aches you, not to have him at your side and also in this fight, in such a way more, that he was very close to obtaining the total success.
But you can be very proud of everything that you have done.
This shout or stronger declaration of war, leave all of us more confident for the future outcome.
We are expect , now that seems to exist new hopes of cure.
Keep your sense of humor, images and the fantastic way you say the things.
Thank you.
I apologize. My iPad won’t let me post the correct link ( I’m still coming to grips with it). Search for ” Living Wednesdays to the full” on YouTube.
Cheers,
Rob
Holy Cow! Took a while to get to the end of the comments! You appear not to be alone, and to be very much appreciated. Please add me to the list of your grateful, cheerful fans.
Tim
Not a CLL story but a cancer story—
My Dad was of southern Italian descent, wearing his emotions on his sleeve. I accompanied him and my mother to his first visit with the oncologist after he was diagnosed with prostate cancer. He was not at happy man!! He paced the waiting room, grumbling to himself as my mother and I watched him nervously.
When the receptionist called him to the desk she asked, “Mr. Cosenza, are you always this grouchy or is this an exceptional day?”
My father started to laugh and loved that girl from that day forward. She put him at ease by knowing just the right thing to say. What a gift she had!
Yes, there is a place for humor when dealing with the worst in life. There has to be.
Thank you Chaya!
Thank you!
So Glad you’re back batting for us Chaya.
I’ve decided to make friends with my 12q CLL and rename it Cute Lumpy Lymph
About four years ago, my other half suddenly came down with Small B Cell Lymphoma (which CLL/SLL can morph into). Unlike CLL/SLL, it is very aggressive, but also curable. Going for chemo treatments was scary, but nurse Wendy frequently had people in hysterics with her sense of humor. It is our ability to laugh at whatever life brings that keeps us going.
Your great ability to provide information intelligently, in a straight forward manner, and with the occasional bits of humor convinced quickly sold me on joining, and I look forward to more laughs in the time to come.
Thank you!!!
I came into the clinic for my last chemo wearing a curly multicolored clown wig, shaking my head, and saying, “You guys told me my hair might come back curly and a different color, but this is RIDICULOUS!”
I do not know why but this Faulkner quote reminds me of my CLL status:
A mule will labor ten years willingly and patiently for you, for the privilege of kicking you once.
William Faulkner
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